leukaemia-limbo-dance

It’s been very busy. Lovely friends and family time before it all kicks off again ‘back to school’ on Tuesday.

Le Long Weekend started when I went round to Pete and Dawn’s for coffee on Thursday morning and had a lovely long chat. As Pete opened the door, he laughed. “Could you park any closer?” he said, raising a humorous eyebrow. Well, actually, no, I couldn’t – and the reason I parked so close to their front door? A sports injury.

Ha! You might laugh, but I wasn’t particularly laughing. After my wonderful mini-retreat on Wednesday, I found I had managed to pick up a groin strain. Silly thing! My leg kept giving way as I walked on it and I ended up having to walk with a bloomin’ stick!! Much to Andrew’s amusement, of course. He promptly videoed me looking decrepit and shared it among the family, who all laughed uproariously……. hummph!

Ah, well – it’ll heal soon enough I expect.

On Friday morning, I spent a good hour and a half recharging my batteries in Jaime’s ‘Peace Pod’ with some Access Bars therapy. That was smashing. Andrew went to recharge his batteries with a massage with the local masseuse. That was also smashing, apparently. We both felt better for our experiences.

And then it was back into family mode with the Kenilworth Newbies calling in for tea. The theory was that we would eat a Jersey ‘Crock Pot’ – a Jersey version of a cassoulet – which Andrew had been entrusted to cook. Unfortunately, he hadn’t fully grasped the length of time it would take and it wasn’t ready by the time we were ready.

Confident of the crock pot being available for tea-time, Michael had also invited the Kenilworth Originals to come and join in, too. As the time neared, it was obvious that a few more hours of cooking were needed, so it was a Friday night ‘Ruby Murray’ for the adults, while the children had the standard Friday night fare of fish fingers, chips and beans.

We were unable to get around the dining table as I had a jigsaw on the go there, so while the grown-ups ate at the kitchen table, Andrew and I entertained the older children in the library area of the lounge, aka the children’s ‘den’. Worked well. Andrew and I always like to channel our inner child.

As it had been Bernie, Danielle’s Dad, who had provided the ingredients for the crock pot, Danielle was determined to sample it the moment it was fully cooked, so the Kenilworth Newbies came round for lunch on Saturday……

Mind you, they didn’t half earn their keep after we’d eaten. While I entertained the children, Michael and Danielle beavered away in the kitchen to clear it up after the Christmas/New Year/every day mess we’d made. I was happy. Oh….. and the crock pot? It was absolutely delicious!!

We whiled away the afternoon with Michael and William having a go at the jigsaw, for which I was very grateful, as Thomas and Oliver sat on my lap, playing puzzles on my phone, and half an eye on ‘Madagascar’ on the TV.

I had come to a bit of an impasse on the jigsaw puzzle. There were only brown/grey/gold furry pieces left and I could hardly make head nor tail of them. Michael did a cracking job and left me with a small central section to complete – which I did, once they’d gone home. Whoopee!! The Christmas Jigsaw is done!

Church this morning with Paul and Freddie – and then a sorry farewell to Andrew, who finally thought he ought to get back to Wales. He’s been such good company – even though he had the dreaded lurgy at one point – and I’m going to miss the endless stream of cups of tea that have been on offer.

We were invited round to Paul’s for a Sunday Roast this afternoon and had another delicious meal. Lovely to be en famille again. All good and lovely and soul-filling.

Now that the festive season and holiday time is over, it’s back to regular life, eh? Whatever that is – it’s going to be interesting to see.

Take care everyone. God bless.

Yesterday brought absolutely foul weather, didn’t it? I toddled into Solihull in the morning to return unwanted Christmas gifts and found myself ploughing through tons of water that had flooded en route from Balsall Common. I was very lucky because it was only about a foot high at that point. Later, I found out that cars had been abandoned in nearly a metre of water on the road. Phew!

Commentary and photos abounded on Facebook of all the water surrounding us in the village one way and another – including this one of the underpass at Berkswell station – no-one, pedestrian or vehicle, was going to get through that!!

Fortunately, the rain abated today to which I breathed a sigh of relief. I had booked onto Jaime’s Yoga Day Retreat and a walk was planned before lunch. She told us that ‘We will be walking, come rain, hail or shine……’ so we all had our fingers crossed for shine.

As it turned out, it didn’t actually shine, but the rain held off with just a few drops sprinkling on us about 100 yards from the church hall where we’d been meeting. We had a fabulous time following a 4.5 mile circuit, chatting all the way and listening to sound advice from Jaime.

I came home, refreshed from the day in which we’d had two super sessions of yoga, the walk and a luscious lunch, expecting to fall asleep on the sofa – but no, I didn’t! Go me!

This evening I joined in with the Wednesday Night Quiz. The first time for a long time. I was a bit anxious about it because it was always John who knew the answers, but everyone was lovely and welcoming – and I found I knew a few of the answers after all! Another ‘Go me!’ moment. Hehe.

Take care everyone. God bless.

It’s the New Year and 2024 has rolled in. Friendly greetings also rolled in as last evening unfolded – and I am grateful for everyone’s good wishes. In return, I hope that the year ahead will bring you all love, peace and happiness.

So, how are we doing? OK, I think. Despite the hole in our souls, the children and grandchildren did their very best to fill it with excitement, love and laughter. A visit or two to the pub on Christmas Eve, Christmas Day and Boxing Day, church for carols on Christmas Day, loads of food, plenty of drink, charades and a Boxing Day walk, all made the festivities very enjoyable.

Pub. Christmas Eve Fish Platter. Christmas Dinner. Post-Boxing-Day-Walk Pub. Hehe!!

Naturally, we sampled all the treats on offer – with the exception of one: The Christmas Cake. I had made the cake at the beginning of November and everyone – including John – had taken their turn in mixing it, as is tradition. As Christmas neared, I wondered who might ice the cake? Because that was always a ‘John-job’, wasn’t it?

Everyone looked a bit shifty, not wanting to take on the mantle, but then Michael thought he might decorate it on Christmas Eve with the children – start a new tradition. Ha! Of course, time ran away with us and, not unnaturally, there was some resistance by us all in getting the job done. I started the ball rolling and put the marzipan on. And that’s how it has stayed. I’ve heard Christmas cake matures with time…… it might ready for next year, maybe?

Take care everyone. God bless.

Sending Christmas cards has gone by the wayside this year with time having run away from me and the local Post Office having run out of second class stamps!

Instead, I offer the very best of the Seasons Greetings to you all by way of a me ‘n ‘im photo from a couple of years ago when we had a bit of fun during the Covid Christmas Lockdown 2020…….

I hope the season holds love and peace for everyone and, no matter what, celebrations can be had.

Meanwhile, back at the ranch, we have been overwhelmed by the incredible generosity of all our friends and relatives. Paul, Michael and Andrew went to collect John’s ashes from the funeral directors last week and discovered that donations in John’s memory have exceeded all expectations. The total now stands at over £2,000!!!

What a wonderful tribute to the ol’ man. Thank you all so very, very much. Those donations, which we plan to match-fund, will certainly make a difference to the work of the charities he chose.

We have all been incredibly moved by the lovely comments on the donations page too, and I invite you to perhaps take a look. There’s a common theme running…..

Here’s the link if you need it: http://www.jdeeleyandson.co.uk/funeralsanddonations/

Take care everyone. God bless.

The family was overwhelmed by the very many people who came to say goodbye on Tuesday at John’s funeral. What a send off for the ol’ man. How amazed he’d have been to see so many cramming into the church and into our home to pay their respects. Wonderful. And grateful thanks to everyone who came.

Naturally, as time elapses, our grief changes shape. For me, I am like the sculpture by Albert Gyorgy – empty inside. Yes, I’ve got arms and legs that move and a head that semi-functions, but my soul has been sucked away. All hollow.

We all know that time will heal us and we must do the living while we can, so I’m basking in the love of the family who have gathered round close, and we hug each other tight. I’m doing what you’re supposed to do: go for a walk, do some meditation, go swimming, a spot of yoga, potter about and enjoy the grandchildren – in the hope that the hollow will fill up again bit by bit.

Meanwhile, I share again my tribute to my darling husband – because I loved him so.

Take care everyone. God bless.

Tribute to John

“How are you, John?” people would ask. “Fine,” he’d reply. And he was ‘fine’ until he wasn’t, which meant it was the end.

I don’t have all the words to describe John. He was my whole love and my world – even when we hit tough times. In all my life, I could never, ever imagine a life without him.

“It’s too soon,” I wailed to the kids, as we kept vigil at his bedside. They chuckled, even in such adversity. “Crikey, Mum!” they teased. “Over half a century together, and it’s too soon?”

Yes. Too soon. Too soon to say goodbye to this vibrant, unconventional, argumentative but sensitive man; the would-be millionaire, the man with large ideas and full-on drive; the man who lit up our lives every day with his quick wit and cranky ideas – even in his blackest hours.

Too soon to say farewell to the stoic; the creative; the problem-solver; the best friend, husband and lover.

Cheeky, he teased us. Often opinionated but charming, bright and intelligent, he had plans for everything and mostly had a bash at it all. Whatever the problem, John could solve it. “I can do that,” he’d say, and he did, right up to the very end.

Au revoir my dear, darling husband, who kept me on my toes all our married life by introducing me to everyone as his first wife.

May you go well now. God bless you, sweetheart. We’ll meet again.

The week is slowly going by. We have walked through treacle but are beginning to see that the preparations we are making for John’s funeral are coming together. We are keen to honour him to the full and share all the memories we can.

For some of us in the family, looking at the photos has been harrowing as we realise our loss. For me, I have enjoyed looking at them, remembering my love.

The children – Paul, Michael and Andrew – have been absolute stars. They have been round most days, supporting each other and me – for which I shall be forever grateful.

Meanwhile, the staff at Deeley’s have been incredibly supportive with all the funeral arrangements and have sent us the link for any donations we, our friends and family might want to make: www.jdeeleyandson.co.uk/funeralsanddonations/

This link will allow us to donate to the following charities, which were all dear to John’s heart:

• Leukaemia Care – a charity researching and supporting all those with blood cancers such as the one John was originally diagnosed with.
• Anthony Nolan – a charity working hard to match those with blood cancers and those who can offer stem cells for a transplant.
• Prostate Cancer UK – funding research that will stop men dying from prostate cancer.
• Something to look forward to – a charity supporting anyone who has cancer, offering breaks, or meals out, or other free ‘gifts’ to help their well-being. A charity that offered us a week in Devon at a time just when we needed it

The church members have also been massively supportive, too – especially Moira, who is taking the service. She has the patience of a saint and on Sunday sat, unperturbed, as we battled and bickered our way through the decisions for the service – only to change our minds a few days later!

Anyway, the link for the service that will be streamed, and which should be available for weeks after the service, so anyone should be able to access it at any time, is as follows: https://youtube.com/live/FNkXq8ZbBQg

Take care everyone. God bless.

We have been busy in the days since John passed away on Wednesday 8 November, thinking about his wonderful character and how best to commemorate him. Obviously, we have cried a lot and, in almost equal measure, laughed at the memory of some of his antics. We have marvelled at his achievements over the years and basked in his everlasting love.

We will say our goodbyes to John on Tuesday 21 November at 11.45 a.m. at St Peter’s Church, Holly Lane, Balsall Common, CV7 7EA.

We, the immediate family, will make our way to Canley Crematorium for the committal after the service and then return home for John’s Wake, at which we hope to see everyone who loved him, or was fond of him.

After the church service, we’ll meet up at our house for drinks and a bite to eat, to mourn John’s passing, but also to celebrate, with love and laughter, the life of such an amazing man and share lots of memories amongst us.

May God bless him and keep him in his arms for evermore.

There has been a marvelling at John’s staying power. The nursing staff who have been looking after him since Sunday told us that he was infamous amongst them.

Nurses who came to visit would shake their heads, trying to prepare us for the inevitable, and whisper with a sympathetic bow of the head or squeeze of our hands, “It’ll be soon.” or “I think it might be tonight.” or “I’ll be surprised if he’s here in the morning.”

And yet John made it through the nights and was here in the mornings, despite their predictions.

All the while, though, he was weakening – and this evening he let go at last.

We were all here at home, having each of us cared for him since he took to his bed. The two older boys had been home to see their families and brought back all their children’s love. That was enough, we think, for him to acknowledge that it was time.

John set off on his final journey just before seven this evening and we gathered round his bed to say our goodbyes, hardly believing that he was gone. Many tears have been shed; many memories shared; and all our love for John poured out.

We love you, John Sleath. God bless. Safe journey.

We were trundling along quite nicely when, unexpectedly, the ol’ man took a turn for the worse on Sunday.

Suffice to say we are now keeping bedside vigil, with MacMillan Nurses, District Nurses and Doctors turning up at various hours to administer various medications to make John comfortable.

He is settled into a hospital bed in the lounge, unconscious and heavily sedated; but nevertheless, he comes up trumps every so often as we talk about a topic he’s interested in, and he raises an eyebrow.

We watch and wait with love. We know the situation will not improve and ask you to wait, with love, with us.

Anything you’d like John to know, prayers or thoughts? We’ll make sure he hears them. They’ll be gratefully received, as the love of our lives moves to pastures new.

May God bless us all.

We are definitely having a series of ‘fat’ days. Days in which there’s a lot going on and not a lot of wriggle room.

Today was just such another day. It started early with John in a kerfuffle with his catheter and a bit of a clear-up operation. Then John decided he’d do a ‘tour of inspection’ on his house. This was unexpected. We had just had a bit of an altercation about whether or not the oxygen bottles and machine were really pumping out oxygen or something else? “I’m not putting the canular on,” he said. Okey-dokey. A little while without won’t hurt. “And I’m going to get dressed.” Smashing. “I’ll just go and get your clothes,” I promised, and ran upstairs to collect them. A few minutes later, I heard the stair lift on the go. Crikey, he was coming up under his own steam.

All fine and dandy so far. John inspected all the bedrooms to check they were shipshape. He got dressed and went into the bathroom to clean his teeth, whereupon I started to realise that the effects of the oxygen had now worn off and exertion was getting a bit more difficult.

He sat with a plump onto the bed and there he stayed…… unable to get himself back up to standing and walking to the stair lift. The walker was too high for him on which to get any purchase. The bed was too low. “Can you lift me?” John wondered. Ha! I did my best.

“Hang on,” I said, “Stay there, I think I’ve got something that might do for you lean on.” One of Mum’s little bedroom chairs was sitting invitingly on the landing. I brought it back and sure, enough, it was just right.

Ah… but just a minute! It didn’t get John near enough for him to transfer to his four-wheeled walker. Right…. I ran up into the loft to fish out the other chair (they had come as a pair) and that did the trick. So by a bit of a hotch-potch, we got John back to the stairlift, down the stairs, into his wheelchair and then the armchair. Success!

And John was persuaded to put his oxygen back on.

Then we waited in for the fire service to turn up. They are apparently going to do a ‘safe and well’ assessment of our home now that we have oxygen on hand 24/7.

Suffice to say, we waited in vain and then I took a phone call to say, ‘Sorry, but we’re cancelling today’s visit. How about next Saturday?’ Fine, I said, but thought it a bit mad that two weeks would elapse before doing the check. Hey-ho. No naked flames, please…..

We pretty much galloped through the rest of the day with visitors. I was grateful that Paul came to keep John company while I went for a massage. That was lovely and relaxing, which I sorely needed.

Moira, one of our Lay Readers, came just after lunch and we had a home communion which was good – although a bit rushed, because Paul had taken a phone call to say that the Community Respiratory Nurse, Karen, was coming out to visit.

Moira left and Karen arrived. While Karen was visiting, the bed people arrived to add an extension to John’s bed. Catherine and Lily then arrived to visit John just as the bed people left. Karen left, and David, Gloria and Darrel arrived. Another bed man arrived with the spare part they’d forgotten earlier. Oooh, it were like Piccadilly Circus!

David made himself useful and mended a couple of radiators – thank you very much. Gloria brought cake. Everyone brought hugs. But by five o’clock, John was ready for a nap, so we said our goodbyes and John slept.

John woke up about 8.00 and we watched a bit of TV before we welcomed Andrew home after his trip to Berlin. Of course, we wanted to hear all about it – which we did, intermingled with John’s left-field commentary, which was fuelled either by lack of oxygen or morphine, making us laugh. I turned his oxygen levels up a bit to see if that would help. It did a bit.

Andrew is on night watch.

Take care everyone. God bless.